Thursday, April 23, 2015

Shameless Plug

I'm back at TCH tonight with my two boys. As much as I hate Landon being in the hospital, I absolutely love watching him sleep. The other night he started talking in his sleep which I had no idea he did. It was pretty entertaining!! And just now he and Aiden stretched or took deep breaths or something at the same time. No one else who love those sounds like me and it put such a big smile on my face. I love my babies so much!! There are days, more than I would like to admit, that I would love to ship all three of them off to have just a few hours to sit and stare at the walls and enjoy the peace. That being said anytime they are gone or happen to all be asleep I keep thinking I hear them. Or if by some miracle I'm in the car alone I constantly have mini panic attacks when I look back and see no one is there. For a moment I think I've left them somewhere and will be on the evening news, my heart drops and then I remember... they're home with Justin or YaYa. I'm not losing it, I just forgot what silence is like. There isn't much news today. Landon continues to improve. Today he had 4 visitors and I'm told his first thing he said to each of them was "Where's my present?" We obviously have some work to do on teaching Landon to be gracious and not greedy and just how to not be so selfish among other things. Thank you so much to those who have come by. We truly appreciate each of you who have taken time out of your day to come visit us and our little man. A Pulmonary Function Test(PFT) has been ordered for tomorrow and depending on how that goes and how his sputum culture is looking there is a slight possibility we could go home tomorrow!! We're hoping for the best, but preparing for the worst. Even walking laps around the hall Landon is getting very short of breath. If you know him at all you he's always going 90 to nothing. While he always gets disgustingly sweaty within minutes of running around or playing or sitting, he never really seems to be out of breath, so this shortness of breath is not normal for him. There will be a time in his life where that becomes normal, but we pray there is a cure before he reaches that point. That being said, here's my shameless plug. On May 9th, we will be participating in a Great Strides walk at the University of Houston to raise money and awareness for Cystic Fibrosis. Last year we had a team of 10 walkers including our kids and my nephews. We would love to have more people to come walk with us as Team Landon or sit in the shade if you're unable to walk and just be there to show your support. It doesn't cost anything to walk, but if you could make a donation it would be greatly appreciated. Our goal this year is to raise $5000, but whatever is raised will be that much more that the CF Foundation has towards finding a cure for Cystic Fibrosis. The research funded by the CF Foundation is making such exciting accomplishments towards finding a cure, but they rely on people making the donations to perform that research. There is no government funded research being done to find a cure for CF because it does not effect enough people to justify the cost. There is actually a drug combo in the pipeline that seems to be helping some with people who have the same mutation at Landon, so this is such an exciting time to be involved with such an amazing organization!! Please consider joining us on May 9th and/or making a donation to show your support for Landon and help us reach our goal. You can follow this link http://fightcf.cff.org/site/TR?px=1321467&pg=personal&fr_id=3505&et=K6CxqPx10zSAguJ2tgrrEw&s_tafId=21352 to get to my Great Strides page. From there you can donate or join the team and register to walk. Again I thank you all so much for your prayers for our little family!! In the midst of everything we know that God is in control of our sweet boy and He alone will be glorified in all that comes from this disease. I know that God has such amazing plans for Landon using his Cystic Fibrosis and it's fun to already see how Landon touches everyone he meets!!

No comments:

Post a Comment