Getting in a Groove

It's been a long, but good day. Landon and Aiden slept pretty good during the night aside from Landon fighting me and the RT's when we would try to do his breathing treatments. He was T-I-R-E-D!! At one point during the night I noticed an e-mail on the hospital's MyChart site that stated Landon was scheduled for a PICC line placement at 2:15pm. I questioned this because that meant he couldn't eat all day I was also confused because they said they wouldn't place this until Tuesday. They must have all thought I was crazy because it wasn't until just now it hit me that today is Tuesday. I'm sitting here laughing at myself because you know what they were all thinking, "Bless her heart." Which is code for "You're so stupid." Anyway, PICC line is in and G-button was been replaced and these happened at 9ish this morning, so woohoo for getting bumped up. Landon woke up this morning freaking out because he did not want to have his g-button replaced. He was so fearful!! After the procedure we'd been back in the room for a while when he said, "Mommy when are they gonna fix my G-button?" I responded that they already did and explained when it had happened. His response, "Really!! Mommy i wasn't even scared!!" Hopefully this has put some possible future fears to rest when it comes to his g-button. Time will tell. If you haven't heard already, we did receive a diagnosis today RSV. Three letters any parent doesn't want to hear, but when your child has a lung disease the fear is that much more. I haven't had time to sit down and get more information on RSV and CF, but that's probably good. Other than trying to get into a routine, not much happened today. Daddy and Madison came up and Madison was sooo excited to see all of us. Her sweet smile will brighten anyones day. If you didn't know it already, my kids are very protective of each other. While Madison was here the nurse took out Landon's IV and this was an opportunity for Landon to cry some crocodile tears and work on his drama. Madison was definitely giving the nurse the stink eye the entire time. Anyway they played watched a little TV and then some more visitors came with goodies!! This entertained everyone for a while until it was time for the party to end and the visitors to go home. Speaking of visitors, Landon is keeping track of how many people come to see him by making a chain. So if you come, make sure you write your name on a slip of paper so Landon can work on his pattern making and count how many people came to see him.

Help him make a fun memory from this stay. All visitors are welcome anytime!! Until tomorrow...