It's been a long day, but it's finally over. Thank you so much to everyone who has been praying for our family!! Your prayers were felt and answered. We started the day with Landon sleeping until 10a.m. I don't know who was praying that he slept in, but I would appreciate that every Saturday morning. I don't think he's ever slept that late and the closest he's ever gotten to that has always turned out to be a day that Justin was staying home with him for some reason. He always wakes up early on mommy's watch...I tell Justin that's because he loves me more and can't wait to see me & spend time with me. Justin in turn usually tells me it's because he dislikes me more and likes to torture me with a lack of sleep. I guess we'll never know which is true.
After he woke up, in a good mood I might add, he immediately began asking for juice aka milk. The distractions started immediately with the fun cart that just happened to arrive at the same time. We happily took a container of green play-doh(sp?) and one of those funky balloon like balls with tentacles. I thought Landon would like the ball, but he's not too sure about the texture. We began his breathing treatments and in the middle of that one of our favorite TCH nurses and one of the child life specialists came in and joined me in the distracting. We played with stickers, play-doh, colored, played with more stickers and play-doh, threw a mini fit somewhere in the middle and we were done. As soon as we finished therapy Landon immediately started saying, "Mommy nak" aka snack. I was brought up not to lie, but I must admit that I did this more times than I care to admit. You see when we go anywhere with Landon for more than a couple hours, I've learned to fully equip myself with pudding, cereal & chips. So the cabinet in his room is fully stocked, but I think God will forgive me for the lies this time. the rest of our distracted day included getting a playground pass from the doctor only to find out the playground was closed due to construction :(, luckily the wonderful volunteers pointed us in the direction of a little garden on the 4th floor so we were still able to get outside for a bit. Then we ran many laps around the 14th floor throwing a Nerf ball, pretending we were airplanes and flirting with any nurse that would look our way.
The hard part began when we were finally called back to the surgery holding area around 1:45. We had avoided watching TV or movies all day which is huge because that's what Landon does during therapy sessions. I hadn't thought much about how well that turned out until the first show we watched has someone eating & Landon immediately began asking for "nak" and juice. It was so sad. Surgery was supposed to be at 2pm, but the OR wasn't clean & ready to go until 3pm. They took him back about 5 min later and then 40 minutes later notified us that they were finally beginning the surgery. I think they were trying to torture us. About 45 minutes later the surgeon come out to give us the scoop and soon after we were able to see our little man.
He is such a tough, brave little man. He is definitely hurting, but we have a PAC pump with some happy juice (morphine) that the nurse & I are pressing every 30 minutes to make sure he doesn't awake in excruciating pain. I finally got a good look at his stomach and it looks good. I was worried I would be a little squeamish seeing him like this, but I think I've been trying to picture him with it for a while, so evidently that helped. Tomorrow will be a rough day as Landon will become more aware of what's going on, but still be in a lot of pain. I'm very nervous about moving him to change his diaper or love on him because you can tell it hurts to be moved. If you've had stomach surgery, I'm sure you can relate. Someone from the surgical team should come in around 6 in the morning to check the incision and see if Landon's having any drainage. So far, there's been very little drainage, so I'm hoping they will begin letting him have clear liquids in the morning. The boy just wants his cup & his poor mouth is so dry. Until the surgeon releases him, he is still on NPO, so no food or drink. He's getting fluids & calories from the IV, but that doesn't help his desire to put something in his mouth. The goal is to begin using the G-tube on Saturday and begin seeing how he's tolerating the feedings.
Thank you again for everyone's prayers and support!! It means so much to our family!!
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