Day7 - Thinkgs are Looking Up

I took last night off to try to get some sleep, but Landon had other plans for me.  We started a milk drip through the feeding tube last night and despite an error made in the amount of milliliters given in the final 3 hours of the night, I think Landon tolerated the feeding really well.  The problem arose around 11 when he woke up with an unusual cry.  It seemed like it was pain, so at first I thought it was the g-button bothering him, but because of his actions when I got in his bed I realized it was a gas problem.  We were not told to give him enzymes prior to the feeding, so the dietician believed that is what attributed to the gas pains.  Landon continued to wake up every few hours with the pain & just wanted to be held or to sit up.  Except from the lack of sleep which I should be used to by now, today was a pretty good day.  The pulmonary team decided it was time to take Landon off the TPN which was great!!  It finally allowed Landon to be free & get out of bed without fear of him attempting to run away & pulling out or on his PIC line. (Insert shiver) Makes me cringe just thinking about it.  By dinner time, the resident had also given Landon the go ahead to eat anything he wanted.  Yeah for no more dietary restrictions!!  We celebrated by walking down to McDonalds and getting some french fries.  I think Landon is beginning to get used o the G-tube, but he still gets very upset if he even thinks you're going to touch his belly.  I know he's still very sore & sensitive from surgery, but I really hope it's gets a little better before next week for my parents sake.  We are looking at a full 10 day stay because of the Pseudomonas, so it looks like it will be Wednesday or Thursday before we get t go home, but Dr. Ruiz, Landon's pulmonologist, has made it clear that if the doctors on the floor hear any rattling in Landon's lungs that he will not be released until that is cleared up.  Today he sounded clear, but he has had rattling off & on since surgery, so please pray that this clears up completely. 

Thank you again for all your prayers & support!!  It means so much to know there are people we can call on if we need anything!!